PBS & Active Support Community of Practice – 8th May 2025

Our 3rd community of practice was our busiest yet! More than 130 people came from right across North Wales including people with learning disabilities and families. Next time we hope more people with learning disabilities will come.

Feedback was great:

  • Best conference I’ve been to
  • Great having bigger presence of people we support
  • Fabulous day.  I have got so much out of all the presentations and workshops.
  • Great variety of talks, presenters and workshops.  Great feel to the day. 
  • Really good mix of speakers and enjoyable and informative CoP.
  • Fantastic informative day
  • More time in workshops to discuss
  • Brilliant day, great talks.  Made me cry – very emotional
  • Highly enjoyed the day thank you
  • Very informative and inclusive 🙂
  • Very well delivered
  • Thoroughly enjoyed the day.  Very informative and interesting speakers.  Having input from people with lived experience was enlightening.  Many thanks. 
  • Brilliant day.  Informative and thought provoking.  Well presented.
  • It was great to see such a brilliant turn out and everyone’s commitment to PBS. The stories told were very empowering. I thought it was a brilliant day and the balance of presentations and workshops worked really well. 
  • I attended the COP yesterday, which our team thoroughly enjoyed and found uplifting and informative.

Main Room Presentations

** Presentations and recordings are only for personal use and ownership remains with the authors of each presentation ** 

Introduction and North Wales Together PBS update

Dr Sandy Toogood

Active Support and PBS in Wales – a personal account of those formative years

Dom Sharp and Sarah Kilby, MacIntyre: Learning to pause

HiJinx Performance

Rachel Martin, Chairperson AngelmanUK / Dal Dwylo

Communication and behaviour, a family perspective

Kamar El Hoziel: A timeline of my life

Workshops

Active support – Barriers to implementation: Sandy Toogood and Andrew Guy – Gwynedd PBS and active support project lead

Active Support is a person-centred model designed to increase the engagement and participation of people with learning disabilities in everyday life. Active Support is about providing just the right amount of assistance to empower people.  It promotes independence, choice, and inclusion. Active support has many benefits including: Improved quality of life, greater independence and greater participation.  The workshop discussed some of the barriers to implementation such as: 

  • Staff resistance due to fear of change or increased workload 
  • Lack of training and ongoing support 
  • Organisational culture not aligned with person-centred values 
  • Resource constraints such as time and funding 

Strategies, or top tips, for Implementation:

  • Assess individual needs and plan tailored support 
  • Train staff and allocate resources effectively 
  • Monitor and evaluate progress regularly 
  • Embed Active Support into daily routines

Useful Links & Resources

United Response

Offers practical guides and case studies on implementing Active Support. 

The Tizard Centre – University of Kent

A leading research centre in intellectual and developmental disabilities, with resources on Active Support.

NDTi (National Development Team for Inclusion)

Promotes inclusive practices and has publications on person-centred approaches.

Skills for Care

Offers training resources and guidance for social care professionals.

Challenging Behaviour Foundation ‘What matters to me’ project

Person-Centered Thinking Tools – Helen Sanderson Associates

RRN My Support PlanRRN My Support Plan

What makes you feel upset (MacIntyre easy read resource)

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